Thursday, March 5, 2015

Dad surgery update 5:30 pm

We are with Dad now and he is looking pretty good.  He is in some pain, but they are working on trying to get that managed.  It doesn't seem that his epidural is working too well.  He just got his delicious dinner of chicken broth, gelatin, and apple juice delivered.  I don't know why he hasn't gobbled it down yet! ;)

Thank you very much for all of your prayers today.  Now onto recovery!

Dad surgery update 2:15

The doctor just came out to say he was finished. Dad is waking up and then he will go to recovery.  We won't see him until he is sent to a room.  

The surgery went well.  He put the stomach back where it was supposed to be, fixed up the diaphragm, and added a wrap to the top of the stomach/bottom of the esophagus (called a fundoplication) to reduce the amount of reflux.  Then he moved the two ribs back to where they are supposed to be...there was a sizable gap of about a handwidth in between two of his ribs!  That's all now fixed up and the doctor thinks he should make a full recovery.  

Like I mentioned in an earlier post, Dad will have an epidural tonight and tomorrow to keep him comfortable.  Then he will have to start getting up and walking!  His girls are going to keep him in line! :). He will have to be on a soft diet for a while until the fundoplication site heals. 

We look forward to seeing him!  Thank you all for your prayers during this long day!!

Dad surgery update 11:45

The OR just called.  The surgeon is done with the hernia and put the mesh piece in.  Now they are moving on to the ribs.  He will be in surgery for about another 2 hours.  

Thanks for your prayers!

Dad surgery update 10:30

We just got a call from the OR that everything is going fine.  Unfortunately, they didn't give us anymore details than that.  I'll let you know when we hear more.

Dad surgery update 8:30 am

Dad was just taken back to surgery.  He will have an epidural placed before going off to sleep to help with pain management for the next 24 hours or so.  

We should get regular updates.

Dad surgery update 8:00

Dad is in pre-op right now.  We are waiting to meet with anesthesia, but we have already seen the surgeon.  The surgery is scheduled for 8:30.

I will update as regularly as I can throughout the surgery so that everyone is kept in the loop.

Times, They Are A'Changing!

Surgery dates and times, that is!

I got a call Tuesday night from CHOP about Abby's VEPTR surgery in April.  It was supposed to be the 6th and now they are changing it to the 23rd.  To those of you who don't have a medically complex child, this may not seem like a big deal.  But given the fact that we are planning for a one month stay and Abby's many appointments are a juggling act as it is, this threw me into a tailspin.  I'd completely blocked out April for surgery and scheduled a ton of stuff for the beginning of May...yay.

A few tears were definitely shed over the frustration and stress of it all.  Then I pulled on my big girl panties and got to work.

After making many phone calls to The Ronald McDonald House (we were at the top of the list when I put in the room request in September...with the date changes, I'm sure we probably won't get in...), ENT, the dentist, audiology, my boss, etc., I think I have everything figured out.  Matt had also blocked out April, but he has some big things for May that really can't be changed...so it looks like I'll be on my own for most of the hospital stay.  At least he can be there for the surgery.  Abby and I will have lots of GIRL TIME!  (If you have ever heard her say this, it's with lots of sass and emphasis...she loves her girl time!)

As always, there is a silver lining!  Two, actually!  Abby will now be able to get her hearing aids on April 7th!  We weren't able to get in until May because of her surgery, but now she will get them a whole month earlier.  This makes me very happy because I was concerned about everything she was missing in school while she couldn't really hear.

We weren't going to be able to do The Red Shoe Shuffle for RMH because of Abby's surgery (it was the weekend after!), and now we can!  I don't know how much fundraising will be able to happen between now and then, given the very late start and everything going on with my dad, but we are thrilled to be able to participate and support our favorite charity.

So, we're choosing joy, are thankful for the silver linings, and are trusting that this surgery was changed for a reason.  My Eternal Optimist (that would be Matt) pointed out that this gives Abby's ribs 17 more days to grow strong enough to hold the VEPTR!

It's all good.  It always is.