Skip to main content

8:15 update

Abby is pretty sick from the anesthesia and hasn't been able to keep anything down yet.  This was surgery #8 and she has never vomited from anesthesia before, so this is a new and unwelcomed development.  She has been pretty miserable!  For now, she is on a clear liquid diet.  

She had lots of visitors yesterday. Caleb, the Bevards, Nina and Paw Paw, and Aunt Judy all came to see her.  Abby was pretty sleepy, but we did get a few half smiles from her.  

She went to the picu from the OR, but was sent to the floor because she was doing so well.  There definition of "doing well" is different than mine, but it was good to get on the floor where they don't have to do vitals every hour around the clock.  

Until about 2:00 am, Abby alternated between throwing up, desating, and being in pain.  We need her to take deep breaths to keep her oxygen levels up, but doing that hurts.  I sit her up to make it easier, but that makes her throw up.  She was just miserable and I couldn't help her.  It was so sad.  She also needed to pee and hadn't, and they were threatening a Foley catheter.  Although the nurse was reluctant to do the bedside commode instead of the bed pan because every little movement made her throw up, I took the opportunity to try right after she emptied her stomach.  I figured that would be the best time to see if she could go.  I was right!  She went right away, and then was able to sleep pretty well from 2-6.

I am trying to convince them to let me give her some crackers to see if I can get her to keep something down.  I know that when I'm sick, that is better to me than clear liquids.  I'm holding off on ordering her breakfast in hopes that I can get her something of substance!

The doctors haven't come to round yet.  Thankfully, Abby's pain seems to be managed right now and her incisions look good.  

A sweet doctor friend of ours from Abby's nicu days reminded me that this is all normal and we just need to give it a little time.  I was so thankful for her wisdom!!  Thank you for continuing to pray for Abby.  Although she didn't have the veptr implant yesterday, her ribs did take an awful lot of trauma and will take a while to heal.

Comments

Mary Lou said…
Julie....
I have not been commenting on people's Blogs lately, as I've enjoyed myself quite the busy Summer. However. I just wanted to let you know that I've been reading each and every update on Abby!! They were unable to implant the VEPTR?! How discouraging that must have been for you.... Hugs!! Prayers!! ;)
Love you later, Raelyn

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi

The Potty Man

Caleb LOVES to go potty! I have never heard a potty training story like this one....Caleb tells us when he needs to go, we take his diaper off, and he goes! Now, is it perfect? No, not at all! We aren't trying to potty train at at all, but we figure every time he goes is one less diaper we have to change! The only time we consistantly put him on the potty is when we give him a bath (he always pees in the tub, so we know he needs to go!) He almost always goes on the potty now instead of the tub though. When he's not "really" going potty, he's pretending to go potty! He's such a funny kid!

Lego Party: Favors

I'm a little slow in posting the Lego Party pictures, but I think I have a few excuses I could use.  At any rate, I wanted to share what I did for the party!  It will take a few posts, so stay with me.  I'll start with how I did the favors. These are the goody bags I made.  I just bought solid colored gift bags and matched scrapbook paper to each bag.  Then I punched circles and attached them with the 3D foam tape so that the circles were raised. I used the keychain (explained below) as a name tag on the outside. These are Duplo blocks.  I put a round magnet on the back and...voila!  A magnet!  (note:  hot glue doesn't work so well...I ended up reglueing them with my apoxy because the magnets fell off.) I made crayons using Lego man crayons.  Yes, I know this guy has lost half of his leg.  The others were already packaged and I didn't want to open one up just to get a picture.  I used a Lego mold  to make the crayons.  Caleb put small pieces of crayon in each m