Skip to main content

8 Days

What's been going on around here?

sleepless nights
packing
soccer
laundry
organizing
spending time with Caleb
work
cleaning up the house
giving teacher gifts
studying spelling words
phone calls
paperwork
making appointments
hotel reservations
grinding teeth
practicing math fluency
picking out movies and toys to pack
paying bills
cleaning the car
finalizing plans for Caleb
refilling prescriptions
stopping the mail

Soooo much to do, so little time!  The packing is as done as it can be until the day we leave.  We got thrown for a loop yesterday when we were told that the Penn Relays were coming to town and ALL hotels were booking up like crazy.  That means NO RMH discounts!  After search for hours to try to get into one of our "regular" hotels close to the hospital, I went ahead and booked something farther out of the city that won't cost me my right foot because we won't know if we get into RMH until Sunday.  History says we probably won't.  This hotel has an indoor swimming pool, so that should make Abby happy!  She'll enjoy getting to swim a little before it's back to not getting the stitches wet for months on end.

Tonight, I am hoping to clean out the car and clean the bathrooms.  I'm going to wait to vacuum and mop until Saturday so that it stays clean, but at least the upstairs bathrooms can be cleaned.  I've been working on emptying out the fridge so that we don't leave a bunch of perishables in there.


We just found out today that we won't be able to meet with Dr. C for pre-op because he is performing surgeries.  I guess it really doesn't matter, as he really won't be able to tell us anything until he goes in anyway.  We will still have our anesthesia pre-op appointment though.  (This is what most people can do at their primary physician's office, but Abby has to have additional examinations because of her airway.)  There's a chance that we will meet with the Nurse Practitioner before the surgery, but I don't think it really matters.  We are just going to have to wait and see.


There's not a whole lotta sleeping going on right now...I keep getting woken up by things that just have to get done...like buying Caleb a luggage tag on Amazon at 4 a.m.  Yeah.  I have sleeping pills for when the stress builds up like this, but they wipe me out so that I can't even function the next day.  Given that I'm working the rest of this week, being zonked won't work either!

I just keep praying the same prayer, asking God to please make her ribs strong--or show us what the next steps are.  Will you please pray that with us over the next 8 days?  And pray that God will give us peace.  The waiting is hard.

As always, we would absolutely love for everyone to send us pictures with the hashtag #purpleforabby on the 23rd!  Abby spends hours looking at them (over and over and over and over and over...) and especially likes when someone sends a picture of their pet dressed up in purple!  We will, of course, be wearing our Joy Runners shirts....but any purple will do just fine!  Tutus are even better!  :)

Thanks so much for continuing to love on our family!

Comments

RicKim said…
We love you! We are praying!!

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi

The Potty Man

Caleb LOVES to go potty! I have never heard a potty training story like this one....Caleb tells us when he needs to go, we take his diaper off, and he goes! Now, is it perfect? No, not at all! We aren't trying to potty train at at all, but we figure every time he goes is one less diaper we have to change! The only time we consistantly put him on the potty is when we give him a bath (he always pees in the tub, so we know he needs to go!) He almost always goes on the potty now instead of the tub though. When he's not "really" going potty, he's pretending to go potty! He's such a funny kid!

Lego Party: Favors

I'm a little slow in posting the Lego Party pictures, but I think I have a few excuses I could use.  At any rate, I wanted to share what I did for the party!  It will take a few posts, so stay with me.  I'll start with how I did the favors. These are the goody bags I made.  I just bought solid colored gift bags and matched scrapbook paper to each bag.  Then I punched circles and attached them with the 3D foam tape so that the circles were raised. I used the keychain (explained below) as a name tag on the outside. These are Duplo blocks.  I put a round magnet on the back and...voila!  A magnet!  (note:  hot glue doesn't work so well...I ended up reglueing them with my apoxy because the magnets fell off.) I made crayons using Lego man crayons.  Yes, I know this guy has lost half of his leg.  The others were already packaged and I didn't want to open one up just to get a picture.  I used a Lego mold  to make the crayons.  Caleb put small pieces of crayon in each m